First steps and what to expect
Being diagnosed with metastatic breast cancer is overwhelming. Here’s what typically happens in the first few weeks:
- More tests - You’ll have scans and blood tests to understand where the cancer is and how to treat it
- Meeting your team - You’ll be introduced to your oncology team
- Treatment planning - Your team will discuss treatment options
- Starting treatment - Most people begin treatment within 2-4 weeks of diagnosis
Decision-making tools for treatment choices
Making treatment decisions can feel overwhelming. These strategies can help:
Ask these key questions:
- What are my treatment options?
- What are the goals of each treatment?
- What are the potential benefits and side effects?
- How will this affect my day-to-day life?
- What happens if I don’t have this treatment?
Tools that can help:
- Decision aids (ask your nurse or cancer council)
- Second opinions (always an option)
- Support person to attend appointments with you
- Recording consultations (ask your doctor first)
Questions to ask your oncologist
Write these down and bring them to your appointment:
About your diagnosis:
- What subtype of breast cancer do I have?
- Where has the cancer spread?
- What tests do I still need?
About treatment:
- What treatment do you recommend and why?
- What are the side effects?
- How will we know if treatment is working?
- Are there clinical trials I should consider?
About daily life:
- Can I work during treatment?
- Are there activities I should avoid?
- Who do I call if I have side effects or concerns?
Finding a breast care nurse, navigator or advocate
Breast care nurses are specialized nurses who:
- Help you understand your diagnosis and treatment
- Coordinate your care between different doctors
- Provide emotional support
- Connect you with resources and support services
Where to find one:
- Ask your oncologist for a referral
- Contact McGrath Foundation
- Call Cancer Council: 13 11 20
Understanding your treatment team
You’ll work with many different specialists:
Medical oncologist - Manages your cancer treatment and medication
Radiation oncologist - Specialist in radiation therapy (if needed)
Breast care nurse - Your main point of contact and support
GP - Continues to manage your overall health
Palliative care specialist - Helps manage symptoms and quality of life (at any stage)
Allied health - Physiotherapists, dietitians, psychologists, social workers
Don’t be afraid to ask who everyone is and what their role is.
Coping with the trauma of diagnosis
It’s completely normal to feel shocked, scared, angry, or numb. There’s no “right” way to feel.
What might help:
- Give yourself permission to feel whatever you’re feeling
- Take things one day at a time
- Accept help from family and friends
- Connect with a counselor who understands cancer
- Consider joining a support group when you’re ready
Crisis support available 24/7:
- Lifeline: 13 11 14
- Cancer Council: 13 11 20
How to explain your diagnosis
To family and friends:
- Be as honest as you feel comfortable with
- It’s okay to say “I don’t want to talk about it right now”
- Let people know specific ways they can help
- Share this website with them for more information
To your workplace:
- You’re not legally required to tell your employer, but it can help them support you
- Focus on practical matters: time off needed, flexibility for appointments
- Know your rights: Fair Work Australia
To children:
- Be honest in age-appropriate ways
- Reassure them they didn’t cause it
- Let them know the plan and who’s caring for you
- Use resources designed for kids: Canteen Australia