Online communities and forums
Connecting with others who understand what you’re going through can be incredibly valuable.
Australian online communities:
- Metastatic Breast Cancer Action Australia– A grassroots organisation established to share resources and support.
- BCNA Online Network - Free, private online forum ‘Living with
Metastatic Breast Cancer’. If you need help joining, call the BCNA helpline (1800 500 258) Monday to Friday, 9am to 5pm AEST. - Facebook groups – In Facebook, search for ‘
metastatic breast cancer Australia’ to find private groups.- Support for women with advanced breast cancer (Facebook group)
- Breast cancer support Australia – metastatic and stage 4 (Facebook group)
- Pink sisters Australia/NZ – stage 4 breast cancer support (Facebook group)
If you are feeling overwhelmed in any online group, it is okay to take a step back. You can mute, leave, or try a different type of support.
Local and national support services
Helplines
- BCNA Helpline 1800 500 258 - Breast cancer specific information and navigation (9-5pm AEST, Monday to Friday)
- Lifeline 13 11 14 - 24/7 crisis support
- Cancer Council Information and Support: 13 11 20 (9-5pm local time, Monday to Friday, excluding public holidays)
Breast care nurses
- Many hospitals have specialist breast care nurses and some have specialist MBC nurses.
- McGrath Foundation: McGrath Cancer Care Nurses provide clinical, psychosocial and emotional support throughout cancer treatment. The service is free, and you don’t need a referral. You can use their ‘Find a nurse’ page to see if there is a nurse near you. You can also contact the Nursing Program Team by phone (02 8962 6100) or email (enquiries@mcgrathfoundation.com.au).
State-based services
- Cancer Council in your state or territory: These offer a variety of services depending on the state/territory you live in. Services include:
- financial counselling
- emergency financial advice
- transport services
- subsidised accommodation
- pro bono legal and workplace support
- wig and turban services.
- Local cancer centres: May run support groups and living well programs.
- Community health centres: May offer free or low-cost counselling.
Support groups
There are a growing number of MBC support groups in Australia. Many meet face-to-face, but several are now offered online via teleconferencing (e.g. Zoom or Teams).
The groups vary in style – some meet weekly, others monthly. Some have a therapeutic focus. Others are simply to connect. A couple are specifically for younger women (usually <45 years of age). Many people report that they have tried a few to find the one that is the best fit for them.
In addition to the groups that meet in ‘real time’, there are also several Facebook groups. Some are general; others are sub-type or treatment specific. The more specific Facebook groups are usually international rather than Australian.
- Triple Negative Breast Cancer groups
HER2 + support groups- Young women with breast cancer (<50 years)
Find support groups by state or territory on the MBCAA website.
You may need to try a few options to find the right fit for you. Not every group suits everyone, and that’s completely okay.
Peer support and mentoring programs
Talking one-on-one with someone who ‘gets it’ can be powerful. Peer support offers:
- someone who understands from lived experience
- practical tips that worked for them
- hope and validation
- a safe, non-judgemental space to talk about fears and concerns.
Peer support programs:
- Counterpart (Victoria only): Peer support for women with advanced/
metastatic cancer who live in Victoria - Advanced Breast Care Group – Queensland: Psychologist-led peer group for women living with
metastatic breast cancer in Queensland.
Other types of support
Support doesn’t have to be cancer specific. You might also connect with:
- Country Women’s Associations (CWA)
- Women’s Sheds
- multicultural associations
- faith communities
- local clubs that can offer community and practical help.
Some support groups meet online, which can be helpful if you live regionally or can’t travel. If in-person groups aren’t for you, there are online groups (like on Zoom). These provide a way to connect from home, work or even when you are out and about.
We’re not all the same, and neither are our families, cultures or identities. Many things shape how we experience MBC and how safe and supportive the health system feels, including our:
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languages
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cultures
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gender
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sexuality
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postcodes
Many people with MBC face additional challenges when trying to get the care they need. These challenges include finding the right interpreter, feeling overlooked as a man with MBC, or dealing with racism, homophobia or transphobia.
This Info Hub aims to reflect those realities and point you to community‑led, culturally safe and gender‑affirming support. You’ll find links to groups created by and for your communities, as well as:
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services that can help you ask for an interpreter
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support to connect with Aboriginal Community Controlled Health Services
LGBTQ+‑affirming care.
If we’ve missed something that would help your community, please let us know.
Click below to search for resources for each group:
Aboriginal and Torres Strait Islander People
Culturally and Linguistically Diverse
LGBTQIA+ community
Men
When you’re not ready for a group
It’s completely normal to not feel ready for support groups or peer support. Some people never want to join a group or talk to anyone else with MBC, and that’s okay.
You can still get support in other ways:
- One-on-one counselling (ask your GP about a Mental Health Treatment Plan).
- Online forums where you can read without posting.
- Podcasts and blogs by people with MBC.
- Talk to your friends and family.