Returning to work or managing leave
Your employment rights:
- You can’t be discriminated against because of cancer
- You’re entitled to sick leave and may qualify for unpaid leave
- You can request flexible working arrangements
- You don’t have to tell your employer details about your diagnosis
Options to consider:
- Working reduced hours
- Working from home
- Job redesign or different duties
- Taking leave (sick leave, annual leave, unpaid leave)
- Disability employment services
Resources:
- Fair Work Australia: 13 13 94
- LiveWorkCancer: Specialized cancer and work support
Financial support and insurance advice
Government support:
- Centrelink - May qualify for Disability Support Pension, Carer Payment, or other benefits
- Medicare - Covers many cancer treatments
- PBS - Reduces medication costs
- NDIS - May be eligible depending on functional impact
Other financial help:
- Cancer Council financial assistance programs
- Utility company hardship programs
- Travel subsidies for treatment
- Free wigs and prostheses programs
Talk to a social worker at your hospital - they know all the programs and can help with applications.
Accessing superannuation early
You may be able to access your super early on compassionate grounds.
Two types of access:
- Terminal illness - Life expectancy less than 24 months (certified by two doctors)
- Compassionate release - For medical treatment costs or mortgage/rent while unable to work
Contact your super fund directly to ask about early access. This money is tax-free if released on terminal illness grounds.
Exercise programs for MBC
Exercise is one of the best things you can do for your health, even with metastatic cancer.
Benefits:
- Reduces fatigue
- Improves mood and sleep
- Maintains strength and mobility
- May help treatment work better
- Improves quality of life
Getting started:
- Talk to your doctor about safe exercise for you
- Start gently and build up slowly
- Find an exercise physiologist who specializes in cancer
- Exercise programs at some cancer centers are free
Safety note: If you have bone metastases, get professional advice about safe exercises to avoid fracture risk.
Nutrition and healthy eating
Good nutrition helps you feel stronger and cope better with treatment.
General principles:
- Eat when you’re hungry
- Focus on protein to maintain muscle
- Stay hydrated
- Don’t worry about “perfect” eating
- Small, frequent meals if you’re struggling with appetite
What about special diets? No diet can cure metastatic cancer. Be very cautious of claims that eliminating certain foods will cure cancer. Talk to an oncology dietitian before making major diet changes.
Managing long-term side effects
Side effects may continue or develop over time:
- Fatigue - Very common. Pace yourself, rest when needed, but stay as active as you can
- Neuropathy - Tingling or numbness in hands/feet. Physiotherapy and medication can help
- Bone health - Take vitamin D and calcium if recommended, do weight-bearing exercise
- Cognitive changes (“chemo brain”) - Memory and concentration problems. Make lists, use reminders, be patient with yourself
Integrative activities (yoga, meditation, etc.)
Activities that integrate mind and body can help you feel better:
Yoga - Gentle yoga suitable for all fitness levels. Improves flexibility, strength, and mood. Many cancer centers offer specialized classes.
Meditation and mindfulness - Reduces anxiety and stress. Helps with sleep. Free apps available.
Tai chi and qigong - Gentle movement practices. Improves balance and reduces stress.
Art and music therapy - Some hospitals offer these programs.
Communication with partners
Cancer affects relationships. Open communication is key.
Common relationship challenges:
- Partner may feel helpless or scared
- Roles may change (e.g., partner becomes carer)
- Less time together due to appointments
- Worry about the future
What can help:
- Talk honestly about your feelings
- Let your partner know how they can help
- Do normal activities together when possible
- Consider couples counseling
Changes to intimacy and body image
Treatment can affect sexuality and how you feel about your body:
Physical changes:
- Vaginal dryness (use lubricants and moisturizers)
- Fatigue affecting libido
- Pain or discomfort
- Changes to your body from treatment
Emotional impacts:
- Feeling less attractive
- Worry about partner’s feelings
- Fear or anxiety affecting intimacy
Getting help:
- Talk to your doctor - these issues are common and treatable
- Sexuality counselors who specialize in cancer
- Intimacy and Cancer Facebook Group
Relationship support groups
Consider joining a support group specifically for couples or partners:
- Many cancer centers offer couples groups
- Online forums for partners
- Resources for helping your partner understand what you’re going through